I have childhood memories of looking out the car window at the blur of cornfields as far as the eye could see. When people think of corn, they typically think of those cute little corn cob holders and summer BBQs. I sure did. Did being the operative word, here. I no longer think of corn as a benign summer treat, and I'm really not all that happy to see the little cob holders, either. I'm tired of seeing corn... because it is EVERYWHERE. In EVERYTHING. Why do I care if its everywhere and in everything? Because I'm beginning to wonder if its a bigger part of Liv's puzzle than originally thought. Yeah, because she needs more complications to her diet and everyday living... ugh.
Its been a while since I've updated a post here. In a certain sense, I think I just needed to take some time for a breather. Liv's been doing well on her formula, and we've had enough foods to keep her feeding skills up. Essentially, I needed to not have every waking moment's thought revolve around FPIES. We've gone to the beach and hit up the local water park. Just enjoyed some beginning summer fun. Unfortunately, though, I'm thinking these things have reinforced my prior concerns about corn. Worse- it appears her problems with corn are more 'involved'.
We had been going to the beach, but she was eating the sand a bit while we were there. I assumed that the sand was the reason for subsequent loose stool and diaper rash. Ok, so we start hitting up the water park. Same thing, except she wasn't eating sand. Wasn't even really ingesting any chlorinated water. She WAS however slathered in sunblock(... with plenty of corn ingredients and soy oil).
You can see where this is starting to go, right?
We went blueberry picking -a favorite activity for L- and thought that this was a perfect opportunity to trial blueberries. You can't really get a more unspoiled source than picking organic berries from the bush yourself, so why not! The first day we went, I had her in an Ergo on my back and only needed to put a tiny bit of sunblock on her. The first day or two of blueberries resulted in slightly loose stool and maybe a hint of mucous, but nothing else. Seemed blueberries were being well received? We went again a few days later to pick more berries. I let her down to run around and even pick some herself. Knowing she'd be running around, I slathered the poor kid in sunblock. Well, the floodgates of mucous poo opened, and it wasn't good. Bloody bottom, reflux and everything. Misery. Her blanket even smelled of reflux the next morning. She must have had some gnarly reflux in the middle of the night.
My mind is still not functioning, apparently, to start connecting dots...
I assume its the blueberries. It was a bit of a mental blow, actually. Even for FPIES kids, the likelihood of reactions to blueberries is really low. Almost no kids have problems with blueberries. What was going on???
THEN. Livvy got ahold of some of her sister's stickers. And ate them. I know that she ate them because they came roaring out the other end fully intact a few hours later like something off of Nickelodeon's Slime Time.
CRAP! Well, literally, but also Oh my Goodness, how did I not see this???
Most kid's things like books, stickers and the like are printed with soy ink. You know- all those lovely things that tell parents that even if their kid ingests it, it won't be toxic? Yeah, well that's how- they use soy. AND, most adhesive is made from....you guessed it! CORN!
The take-away from the last few weeks? Corn is way more of a problem than I thought it was, and even more of a problem than I thought it could be. GI symptoms from topical applications of corn products and by-products? I've heard of the phenomenon from other FPIES mamas, but I'll admit its odd. There is not much known about FPIES, scientifically speaking, and so much that the doctors don't understand about the mechanism of it. If it was 'just' protein intolerance, GI symptoms shouldn't be manifesting themselves from topical application of products. Patch testing -which is a bit controversial in the FPIES community- shouldn't get any results either for that matter. But some have had very accurate results from it. Its obvious, to me at least, that this is truly an allergy of some sort... we just don't understand the 'sort'.
My plan of action is to painstakingly remove ALL corn products from Liv's life and see how she does. It makes me wonder if some of our other 'fails' were fails because there was already something her body was fighting in a way- all the additional corn products. Tylenol, wipes, the occasional disposable diaper (we use cloth most of the time), baby soap, sunblock.......
Other thoughts? I am hoping and praying regularly that we don't somehow develop issues with her formula because of corn intolerance. THAT is a whole other frightening topic I'm not even sure I want to think about more than a few sentences worth.
I suppose its a good thing that I 'took a few weeks off' of my FPIES mommy brain working in overdrive. I'll need the energy to deal with ridding corn from Liv's life.
Yup. I just don't look at corn at the farmer's market the same way anymore. A kind old farmer said while I was there last, 'Oh, you must be looking for some of this [corn] too, right?'
'No, thank you, sir. We have too much corn at home already'.
Hang in there....getting rid of corn is actually easier than the constant guessing and taking out of other foods because of the corn-y exposures. It really is in everything but can be avoided, with careful diligence.
ReplyDeleteThanks Joy :) ...careful diligence- current story of my life.
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